|
There are more than 1000 Genetic Support groups in Australasia able to provide support and information to individuals and families living with genetic condition.
A support group can offer the opportunity to reduce isolation, share experiences, practical suggestions and ways of coping.
The Australasian Genetic Alliance (AGA) facilitates networking between these groups, health professionals and patients and families to improve community and professional knowledge of genetic conditions, their impact and available services.
The Alliance has taken a lead advocacy role in representing members interests in national genetics issues.
The AGA provides written and verbal submissions to Government and others in the field of genetics and participates with like bodies nationally to further represent Genetic Support Groups and their members.
|