About Us

There are more than 1000 genetic support groups in Australasia able to provide support and information to individuals and families living with a genetic condition. A support group can offer the opportunity to reduce isolation, share experiences, practical suggestions and ways of coping.

  • The Australasian Genetic Alliance (AGA) facilitates networking between these groups, health professionals and patients and families to improve community and professionals knowledge of genetic conditions, their impact and available services.
  • The Alliance has taken a lead advocacy role in representing members interests in national genetics issues.
  • The AGA provides written and verbal submissions to government and others in the field of genetics and participates with like bodies nationally to further represent genetic support groups and their members.

Our Vision:

  • We seek to overcome the challenges of genetic conditions.

Our Mission:

  • To work collectively to support people living with a genetic condition.
  • To increase community awareness by networking, sharing resources and by representing common interests.

Aims and Objectives:

  • To contribute and comment on policy relating to human genetics and health services.
  • To network and share resources to promote genetic support services.
  • To participate in public debate on ethical issues relating to genetics.
  • To raise community awareness of genetic support groups and the impact of genetic conditions on individuals and families.
  • To promote equity of genetic support within Australia and New Zealand
  • To participate in international genetic alliances as a regional representative for Australia and New Zealand.

Our Values:

  • Respect:
    We show respect for the inherent dignity of all persons at all times in all circumstances.
  • Integrity:
    We are honest, open and transparent in all that we do, and we are accountable for our activities.
  • Diversity:
    We value the richness that a diversity of views, backgrounds and experiences bring to our organisation.
  • Opportunities:
    We are committed to the belief that every person has the right to access the necessary supports and services to reach their full potential, regardless of age or circumstances.
  • Inclusiveness:
    We believe that families have a right to be included, provided with information, support and recognition for their integral role.

AGA Member Groups